Tuesday, September 15, 2015

So I'll Never Be A Professional Painter

Changes and life go hand in hand. This is nothing new. If your life isn't changing constantly, you should probably have someone check your pulse. Your journey is, and will always be, filled with bumps, and detours, stop signs, road closures, mountains to climb and every once in awhile you might get lucky enough to have a lazy stream to float down, before you hit the rapids.  You can accept that these things are going to happen, learn a lot of lessons along the way, enjoy the little things, and learn to understand that everyone's journey is different and you can't compare and should never compare yours to anyone else's. Or... You can stress and worry, stand still, be afraid to take chances, and get angry that life is hard, and it's just not fair. The best part of your journey....you get to choose.

I used to love taking pictures when I was younger. I have photo albums full of goofy pictures of family, friends, college roommates, family vacations. Then I got married, and I stopped taking pictures. The only pictures I have of my children until recently are ones that my mom took. Why?  I wasn't happy. Don't get me wrong, I love my children, and I'm so glad I have a mom who took pictures for me. Mentally I couldn't do it. All I could do was survive. Everyday I woke up, I went through the motions of the day. I focused on trying to make my husband happy. I couldn't think about or do anything else.  It was all about him. I just wanted him to notice me.  "Look at me... I'm your wife... You did marry me... You do love me, right?... Why am I begging for your attention? Why do I feel like you don't even see me?"   And I isolated myself from my family and the world. I never asked for anyone to help me with my kids or if I ever got sick, because my life became very private. There were so many things I had to hide.  I couldn't do anything without my husband questioning me why. I'm going to lunch with my mom... Why? How long are you going to be? Where are you going? It must be nice to be able to go out...Why can't I go?  If I was at someone's house for more than an hour, I would get a phone call. Where are you? Why aren't you home? Who are you with? I need you to come home now. Doing anything, was a stupid freaking battle that just wasn't worth the energy, so I have many years of my life that I honestly don't remember do much but existing. I wasn't allowed to be on a computer or have an email. If I was on the phone longer than he could handle, he was right there, asking who I was talking to, how much longer I was going to be... Sorry...gotta go...  The alcohol was a major contributor to this. He denies he was ever like this. It must be nice to be able to conveniently not remember the pain you've caused. I still have a hard time allowing people into my life....into my home. I don't invite people over, admittedly I cringe a little when someone wants to come over and see me. I'm sure there are people who think I'm strange. I have my reasons. I live with a man who has always thought it is just teasing when he puts me down in front of others.  It's awkward and embarrassing. Having someone who teases you about your insecurities isn't funny, it's cruel.  Yea I get it I'm not the greatest cook (like you ever eat anything I cook), the house is a mess (I work 40 hours a week, what do you do?), oh yea and I need to lose weight. (Maybe if you shut the fuck up about it, I would). I get it you want me to look like the hot woman running down the road... Well, why don't you go try to see if she wants someone that looks like you... Go ahead give her your number. (Fuck you).  We've been married 17 years and 7 months. We moved into our home a month after we got married. For the first 10 years I purely existed. I took care of the kids, I worked, I did my best to keep him happy. I was afraid to do anything different, because I believed this was as good as it was ever going to be for me. This is what I deserved, because I believed I was worthless. There are times I want to go back and slap that version of me and yell, "STOP IT! Wake the hell up, you are so much better than this!" But, I had lessons to learn, and I needed to discover them.

The last 7 1/2 years, I've spent working on myself. I started allowing myself to think and do and feel. Change, lots of change. There is the old me, and there is the ever changing, constantly evolving me. The last time we painted in our house, was maybe 12 or 13 years ago. I don't actually remember when, I just know my youngest son wasn't born yet. I was only allowed to paint the doors, and anything I couldn't screw up. I've lived with the ugliest pink painted walls for so long, and a hallway that was never finished. Why? He just never got around to it. Why didn't I just do it? I didn't dare.  So.... We are changing a few things in the Hamilton home. Putting fresh paint on the walls, my color choice, and I'm painting this time. Well, me and the kids. I've discovered, I really hate painting, but I really need to do this. It's another step in my own personal healing process. I've had people ask if I need help, but there are some things I absolutely need to do on my own. It's almost done. Carpet hopefully going in next week, and we are turning the downstairs family room into a bedroom for Todd. He needs to be on the main level. He's too unsteady to be going up and downstairs all the time. Part of liver disease is, the person who has it starts flipping their days and nights. He sleeps a lot but ends up most nights being up all night long.  I work nights, but I need to be able to sleep when I get home, and I only get so many hours now that school has started. My nights off, I just want to catch up....I need to sleep. Being woken up multiple times during the night, because the tv is on, or the light is on, or he's in the room eating, or going through the closet looking for something is just about driving me insane. So he's moving downstairs, and I'm going to learn how to sleep through the night again...hopefully...and pray he doesn't fall in the middle of the night. I also bought a camera for my birthday this year. I've just been using my phone for the past couple of years. I'm taking pictures again. I'm no great photographer, but I'm loving being able to stop and capture all the little things on my journey. The mountains, sunsets, my kids....life. And I'm enjoying the people I'm meeting and allowing to come into my life. And I'm learning to trust and love, and feel good about myself. And my painting skills....well, don't look to close, however, it's perfectly imperfect. So I'll never be a professional painter or a perfectionist, I'm completely fine with that. I am perfectly imperfect and learning to love all my beautiful imperfections. ❤️

Thursday, June 18, 2015

Living in the Present

"When looking back doesn't interest you anymore, you're doing something right."

I posted this quote on my Fb page, but only after I read it, stared out the window, and thought about it for a few minutes. I realized, I've finally made it here. I certainly didn't wake up one day and say, I'm only moving forward, I'm not looking back anymore, I've forgiven the past and I'm done. HA! I wish it was that easy. I wish there weren't things from the past, that come out of nowhere and still manage to hurt me, although not so much anymore. It's taken years of pain and what I thought was forgiveness, only to realize I was nowhere near wanting to forgive, finding balance, only to have it thrown out of whack. Patience and tears, arguments, frustration, love, hate, acceptance and happiness. Most importantly finally being able to leave those moments in the past where they belong.  

So one day after being encouraged to explore another way to try and be creative, I sat down and I let these words just flow. It was like they truly jut needed to come out.  I needed to write them down and look at them and feel and understand them.  

She sits in the dark, at the top of the stairs
Uncontrollable sobs, tears that won't stop
She's tired
This is not the life she wanted, but the life she chose 
Her stubborn pride keeps her here
Her pain and secrets are hers alone 
Rocking back and forth, staring at the ceiling, she pleads for help
Feeling defeated, broken, afraid
Wondering if she still loves him
Did she ever?
Most days she hides behind a smile
Can anyone see that it doesn't quite reach her eyes?
Do they care? 
She doesn't understand that this moment is one of many that will not break her completely 
It is one that will help her become her future self
She won't see that for years
Right now...she is tired
She sits in the dark, at the top of the stairs 
No more tears, she's done crying tonight
She sits in silence, not thinking just listening 
She hears only the quiet of the night, before picking herself up
And starting again.

This isn't just a representation of how I felt many times over the years, but also an actual moment in my life. I wrote this and then sat and cried, because every feeling I had on that night, came crashing over me. Alone, scared, angry, no one to talk to, because I couldn't admit...wouldn't admit what I was going through. Every feeling I had that night, came from years of hiding...everything. Psychological/ emotional abuse is easy to hide, if you know how to smile right. 

This is also where I know I've turned a massive corner. I needed to confront that night. I needed to face all the ugliness of the past and stop calling myself stupid for the decisions I made. Yes, my life could have gone in a completely different direction, if I had just made other choices, but I didn't, and living in the past doesn't work for me anymore. Saying "if only" and "if I just would have" ...doesn't work for me anymore. I am fully in the present, doing what I need to do to have a healthy future. My kids love their dad...and so they should. The memories they form now are important. Letting them have this time is important. Life is different, it's by no means easier, but, it's different.  And even though I have frustrating days, as a caregiver, I'm actually doing really well.  My scars are part of my past, they are part of me. I am who I am because of everything I've been through. And every moment I have that puts a genuine smile on my face, heals those scars a little more. I had a lot of days, months possibly years, where I don't really remember laughing or really genuinely smiling. Maybe I did, I just have no specific memories, other than loving my kids and doing my best to raise them. So to say I'm happy now, to say I have no interest in looking back is a pretty big thing. A really...good...thing. :o)

Friday, May 8, 2015

You Don't Really Know Me.....Do You...

I know it's been awhile but I've had a lot going through my head lately.  So... This post hit me as I was sitting in my car, having a discussion with Todd.  He wanted to stop at the garden center on the way home from his appointment. I told him I would drop him off, because I didn't have two hours, (average Todd time) to just sit in my car waiting for him. He asked why I couldn't just come in and look around.   And this is where I look at him with an "Are you serious?" look on my face.  Even if I'm at a place I love, like the garden center, if I haven't planned to go, don't have the money, any number of reasons... I can't do it. If it's my time by myself, that's one thing. If I can't walk out that door when I want to that's something entirely different. It is stressful and draining...and I can't do it. It's hard to explain... I understand that, but still I asked him, "How is it possible that we've been married for 17 years, and you still don't get it, you still don't know this about me?"  Then I started thinking about a few conversations I've had this week.  Mother's Day is this Sunday. Every year, and I'm serious, every...year, we have the same conversation. "What would you like us to do for you this year?"  Do whatever you want as long as I A. don't have to go anywhere when I wake up, B. don't have to do any dishes and C. can just stay in bed most of the day. Please... Just let me relax and be lazy. "How about we take you out to breakfast?" I'm sorry did you happen to hear anything I just said? Something about me not wanting to go anywhere? Every year people...I'm not kidding you...and 3 times in the last week. I would like my children to bring me breakfast in bed...period. That's all I'm asking for. A quiet, relaxing, lazy day with my kids or by myself. That's it, perfect day.

Now we've had plenty of arguments where I've told him he doesn't know me, as I storm out of the room or house or whatever, but this is a valid question.  We've been married 17 years, and I'm not sure he could tell you anything about my life before we met.  He's never asked. We've rarely had those kind of conversations. Funny enough I realized that, last night, talking to someone I know.  How do I even make this marriage work when I only find things out about my  husbands life/childhood when he's drunk and telling me how much he hates his dad and his family.  And we never really talk about anything at all, because by the time we are alone he's already been drinking. How do I make this marriage work when I feel like I don't even matter to him? The first and last time we went to Las Vegas together, where I was born and lived for a few years, he wouldn't even give me two hours to drive around and find the houses I lived in.  Two hours was all I wanted during the 3 days we were there....for him...to see a big monster truck show.  When we were in New Jersey for a family reunion, I barely got him to drive around my hometown, where I feel like my whole life happened, in the few years I lived there. He didn't care about the schools I went to, the Linwood Market that was just a corner store that my friends and I went to all the time, the bike path I'd ridden on a million times, the swings at the park where I sat with my best friend, my home where I grew up.  None of it mattered. If he loves me, why doesn't my life matter? How do you make a marriage work, when you feel like you are nothing to the other person? Well you don't. How can he possibly love me, when he didn't even try to know me? When all he knows is what he wants me to be, but not who I actually am. Crazy isn't it? I'm sure it's fairly common.  Well, if you don't want to listen to me talk about my life before we met, then chances are you're not caring what I say on a daily basis, so you're not growing and learning with me and then we find we're together because....? I don't know about your marriage but this is mine and it makes for an incredibly unhappy one.

Maybe it's my own fault. I thought as long as someone told me they loved me, that was all I needed. We didn't really need to communicate because I was busy raising our children? I have kids to take care of...that's enough right? No... That's not enough.  I needed him to show me he cared about me. To make me feel like I was the most important person in his world. I don't think that's too much to ask, because I would have done the same for him. Well, we live and sometimes we learn. I can tell you in the last few years I've learned a lot about myself and life in general. I'm moving forward with my life. Doing things for myself, getting to a place mentally where I'm good.  I'm limited to what I can do, but that doesn't mean I'm completely stuck.  I'm still going to take care of him. It's ok if you think I'm completely nuts. I'm happier right now, than I've been in a very long time. That probably only makes sense to me, and I'm fine with that. I know I have people in my life who love me for me, who let me live my life whether they agree with me or not, without judgement and without trying to change who I am, and that's really all that matters.  And maybe one day he'll understand I could have been so much more, if he just would have accepted me for me, listened and gotten to know me.  Then again...maybe he won't and that's fine too.  

Wednesday, December 31, 2014

My Last Post...... For Now...

After my last post I decided I was done.  I reached my absolute limit, hit rock bottom with this damn disease.  It got too hard and I lost it.  I've learned a few things over the last few years of writing down my thoughts.  When I write about being strong and centered and being positive I have a lot of support.  Go me I'm invincible.  When I'm having a hard time I get a little less support, maybe because people know I like to be left alone.  Just because I want to be left alone during these times doesn't mean I want to feel alone.  I need to be left alone because that's how I deal....how I make sense of things. I need quiet, I need to be alone with my thoughts.  I write it all down as a way to get it out of my head, I go for a drive, take pictures, listen to music, I sit in a quiet place. I need to get them out of my head so I'm not holding it all in.  When I hold it all in then we go to the next level... I explode....and then I come across as bat shit crazy.  And everyone takes two giant steps back away from me, and that's about the worst feeling in the world, because then I am alone. And then I go back to putting on a fake smile because I realize nobody wants to know when I'm having a hard time.  No I'm fine....really...it's all good.  There is no easy fix to this situation....that I can promise you.  I have gone through every option in my head over and over again. And the one thing I come back to is this.... I have four kids and their father whom they love has a horrible disease that is slowly taking his life away.  I don't love this man anymore, I haven't for a long time.  That doesn't mean I get to be selfish.  It means I need to learn how to have a little more compassion and I need to stop being so angry.  We had a cat that we adopted a couple of years ago.  We have no idea how old he actually was. My 17yr old son bonded with him instantly.  When we brought him home he didn't run and hide like cats normally do in a new place, he walked around like he always belonged in our home. Followed my son and also my daughter everywhere. He was always with one of them.  All they had to do was call his name.  Three days ago he died... No idea why. I had to deal with three very sad kids all crying over their favorite cat. Having to watch a 17 year old boy so unbelievably upset and knowing there was nothing I could do but leave him alone ( because he is so much like me) was just about the most heartbreaking thing I've had to experience.   I could easily divorce Todd at this point...call up his dad and say come and get him, he is no longer my problem anymore.  Trust me when I say I would love to do this and if it was just my feelings that I have to think about, it would have been done long ago.   I have four kids, this affects them all differently.  It is hard on all of us. It is trying. It pushes us all to our very limits. My kids, even though they know their dad is going to die,  have no idea what emotions they are going to experience when it happens.  I do....I was 17 when my dad died.  And it doesn't matter the reason, if it's sudden or drawn out because of a chronic illness.  They will experience every stage of grief in the order that it hits them for as long as it takes....and so will I.  Maybe I already am.  I also know this.... I haven't been doing a very good job at keeping the peace.  I've let my anger dictate how I react to situations. This is wrong on every level. I'm not going to fall in love with him again.  Those feelings just aren't there. But I do need to start thinking about everyone else and I need to stop letting the past dictate the present.  Yes...Todd is/was an alcoholic/addict.  He's made a lot of mistakes.....well haven't  we all? I'm not excusing his behavior I still have a little way to go before I can forgive him. But, something has to change....and honestly it needs to start with me.  This year has been a trying one. It hasn't been all bad. I've had some really great things happen...things that have made me unbelievably happy.  Things are hard...they are going to get harder.  I'm looking into what I can do as far as care for Todd...I'm not going to get help from his family, but I am going to see what insurance will cover, because I need help.  I can't do this by myself anymore.  So saying goodbye to 2014...overall it was alright....looking forward to 2015 and more learning, and growing. Taking some chances, trusting, and giving myself a break.  And my blog.... I won't delete it for now, but I am going to take a break for a few months.  Happy New Year.. :o)

Tuesday, December 16, 2014

I'm Only Writing a Blog Post Because I'm Avoiding Christmas Shopping

I need a time out.  Yesterday I had a less than flattering moment. I'm tired.  I'm hating Christmas this year.  I don't want to listen to Christmas music at all.  If I didn't have children and one specifically that this year is more aware of and excited about Santa Claus than he's ever been....I wouldn't even bother ... Seriously. I'm sick of the commercials that I've seen a million times since October and the decorations that have been in stores since September.  What the effing Hell is up with that by the way?  And here we are 9 days until Christmas and I haven't even begun shopping yet. Shopping gives me anxiety... Christmas shopping can push me over the edge... Having to Christmas shop with Todd pushes me to mental breakdown status and a possible admit to the psych ward.  Everyday....and I'm not exaggerating he wants me to take him shopping.  The problem.... Because I could easily drop him off somewhere.... He really needs to have someone with him.  As much as he shouldn't be on his feet because of how unsteady he is, he doesn't want to be in a wheel chair.  He's worn all of us out.  The kids can't handle hours of shopping.  They hate it.  I hate it.  His feet and legs can't handle it.  He doesn't pay attention to his body's limitations.  He spent 4 1/2  hours at Walmart looking for a birthday present for our son who turned 17 a few days ago and bought one thing...for himself.  He's always been this way.  The thing is, he has less and less hours in the day that he really has any kind of energy to function.  And once he gets past a certain point he has no idea what he is doing, and we hit the wander around the house looking through closets for nothing in particular at all hours of the day and night, turning on lights when I'm trying to sleep, pouring giant bowls of cereal and leaving them on the table, or spilling them all over the floor, falling asleep in the garage for hours on end lighting cigarette after cigarette... burning holes in his clothes, spilling drinks everywhere....food everywhere....phase of this damn disease.  He doesn't listen when I tell him he's too tired to go outside to smoke, that he just needs to lay down and rest. "I'm fine Angie...leave me alone."  Fine go ahead.   When I had just finished showering yesterday and my daughter started pounding on my bedroom door crying because she went out to the garage and couldn't get her dad to stay awake for 2 seconds I kind of lost it.  He is hurting every person in this house.  We dealt with the alcoholism for years and now we have to put up with this shit?  It's not fair!  I realize I should have more compassion.... I'm sorry, I don't.  I don't like him very much right now and quite honestly I would love to be able to move on with my life. I'm so sick of this.  Sick of him telling me I tricked him into selling his van so he has nothing drive.  Sick of him not understanding what is going on with his body.  Sick of missing work because of these stupid phases we go through.  Sick of having to take care of.....everything.  After I finally got him to sleep for a few hours, we had a talk.  And because he remembered nothing about earlier in the day I had to go over it all again.....including the part where I told him I was packing his bags and calling his dad (a man I have sworn to never speak to again) and telling him to come and pick him up because I can't do this anymore.  And I looked at him and said.... "Do you even understand how hard this is for us?"  Force him to quit smoking? Sop buying him cigarettes?  Anybody want to volunteer to stay with him while he has temper tantrums? Because I sure as hell don't.  Been there done that... No thank you.  I can say for sure at some point if insurance covers it, he will end up in a care facility, if it doesn't, I don't know what the Hell I'm going to do.  And having said all of that...yes I'm aware he is the one with the disease.  He is the one dying. How do you care about and have compassion for someone who acts like an ass? I'd really like to know, because I've tried, I really have....and I'm failing miserably.  The kids will have Christmas, I already know what I'm buying...mostly. I am the mom after all.... The one that has to make the magic happen, whether I'm in the mood to or not.  And it will all happen after I've finished whining and complaining about the unfairness of the choices I've made in my life.....and life will go on.   

Sunday, November 16, 2014

Hey There... It's Been Awhile

Back in August, after my last post, I walked away from my blog.  I honestly felt like I had nothing left to say.  I was tired of talking about Todd.  I'm still kind of tired of talking about him.  However I do have things that I've learned about myself in the last couple of months.  For about three or four days I've been trying to figure out what I've wanted to say.  I'm still figuring it out as I go...don't mind my random thoughts.  This may end up being a long catch up post, with some things I've learned along the way.

Todd is still slowly declining in health.  He's lost close to 80 pounds.  He's looking older and more frail.  He's very unsteady on his feet so occasionally we use a wheelchair.  His memory still isn't great.  He has occasional falls. We still have occasional arguments about him wanting to drive. I still get angry at him over things that shouldn't be a big deal, but end up being a big deal. I know...I need to pick my battles...but having someone who knows how to push all the right buttons, that stir up memories that I wish would go away, makes it incredibly hard to walk away, without blowing up.  It is a challenge being the only one taking care of him.  His family has not seen him in months.  In fact I think they are mad at him right now....for what?  I have no idea.  It could be as simple as him not returning phone calls or texts. These people are never going to get it....ever.  So, I have no one who can help me.  And it's not that I really need help, it's just that the every day "stuff" can sometimes be insanely frustrating. I'm just worn out.  I'm working a later shift at work, getting home closer to when the sun comes up.  It's hard, and it's exhausting. I'm averaging maybe 5 hours of sleep at night and usually skip an entire nights sleep each week, just so on my nights off I can be tired enough to go to bed at a decent time.  It's life, I can handle it, but admittedly some days I don't handle it very well. I'm doing the best I can, and really considering everything, I'm doing pretty damn good. 

Over the past few months I've had a lot of new people come into my life.  It's been nice...refreshing.  I've always shied away from meeting new people.  I'm getting better about letting more people into my life that are positive influences.  Let's face it, I need all the "positive" I can get.  I've also learned how far I still need to go on my journey.  I thought I was good...balanced...forgiving.  The past was in the past.  Not so much.  The one thing I've learned for sure, I won't be able to forgive Todd completely until he's gone.  There are too many memories that run through my mind, that still hurt.  I have triggers, when he says or does certain things...and I get angry...and I throw memories back at him trying to hurt him.  I'm still damaged... I actually really hate that word.  I've definitely come a long way, and I am definitely on a different...better  path on my journey than I was at the start.  But, talking to people who are close to me, I have found there are things I never realized affected me that affect me in a big way.  Just an example.... Alcohol.  I have a hard time with people who drink.  One drink... 20 drinks. To me it's all the same.  It all has the same end result.  You hurt the people who are close to you, you get sick....and you die.   Watching people who are drunk makes me ill.  I watched Todd go from not drinking when we got married....to one beer a night...to 6...to 12...to 18 and sometimes 24 and then eventually adding a bottle of Rum that would last maybe two or three nights. Watching people who are close to me drink, scares me.  I don't know how else to describe it.  The difference...and what I need to learn and work on, is that not everyone has an addictive personality like Todd.  Everything with him was/ is in excess...obsessive.  Just because someone drinks....and I know this...but, I need to make my brain understand it, doesn't make someone an alcoholic.  It took someone very close to me, and is thankfully very patient with me to make me look at this and other things I have a hard time with in different ways.   It's hard...and it takes a lot of work, and I'm trying.  It's hard because I don't know what is normal. My marriage....if you can even call it a marriage anymore...I kind of don't...is extremely dysfunctional.  I'm hoping one day I can have a "normal" healthy relationship with someone.  I'm not sure how to do that yet, and it scares me.  I second guess so many things.  I have a lot of  "What ifs" in my head.  My biggest....What if I completely screw up a good thing because I question too much? Yes...it's possible.  The good news is I'm learning and I'm healing.  Having people in my life who are unbelievably patient and let me know when I need to step back and look again at something a little differently, and having the ability to do that has been an amazing experience, and a huge step forward for me.  Do I consider myself a victim of abuse?  I've thought about this a lot lately.  I was never physically abused. The closest I ever came to that was one night before he quit drinking.  He was incredibly drunk and I was beyond tired and I said something that set him off....he threw a lot of things around our bedroom before getting in my face looking at me with a look of pure hatred that I had never seen before, with his hand in a fist.  I stood there motionless, looking into his eyes, holding my breath for what felt like forever, it was maybe 30 seconds before he turned and walked away and passed out shortly after.  Hands down worst night of my life.  He remembered none of it the next morning....wondering why the tv remote was broken, why it looked like I had been crying all night....probably because I had been crying all night.  I think that was the moment that made him realize he needed to quit. And when I look back....it was the moment that if I'm being truthful with myself,  I realized I was done with him.  That was almost 7 years ago, and for too many years after,  I was still too afraid to leave. Now I just feel sorry for him, I'm absolutely not afraid of him anymore and I feel like maybe I just have something to prove to myself....maybe that sounds stupid...I don't know. Victim of abuse? I personally choose not to label myself in that way.  I put up with a lot.  Mental, emotional and verbal abuse? Yes.  Not constant every day, but it was definitely a part of our marriage.  I used to argue with him when he was drunk.  It took me a few years to just keep my mouth shut and give in.  You want me to make breakfast (eggs, hash browns, sausage...you know the works)  for you at 3am after I get home from work, even though I'm dead tired and need to get up with little kids in a few hours?  Fine.... Resentment....resentment...resentment.  You want to point out women to me and tell me you want me to look like them....sure I'll laugh it off...as I swear at you in my head, and feel worse and worse about myself.  More resentment.  I could go on, but I won't.  I have plenty of stories that he denies and now says he never would have done.  Sure....ok....whatever.  He doesn't remember.  This being the reason I need to forgive him, and let it all go....and why right now I can't, not completely anyway.  There are still too many triggers in my face, everyday.  Sometimes I walk away, sometimes I can't and I explode, because dammit he needs to remember it so it can hurt him as much as it hurt me.  That's never going to happen and it's not the right way to go about any of this.  I know it's wrong to throw it in his face.  I know it's wrong for me to want to hurt him as much as he hurt me.  I would be a better person if  I could just let it all go.  Sometimes it's just not that easy....period. However, I am trying.

Earlier this week, I scored a huge win for my 10yr old at school.  Like...I totally kicked ass.  Starting in first grade we determined he needed to be in a resource class to help him in areas he needed help with.  He has a very low level of comprehension.  He has never been diagnosed with anything.  The school keeps wanting to label him with ADD.  It has been a frustrating few years of me trying to get his teachers, speech therapists, school psychologists, principals....to listen to me.  I almost always walk out of the meetings we have...one at the beginning of the year to review and make changes to his IEP and one at the end to wrap up the year and see how far he has progressed.... feeling like the worst mom in the world.  Discouraged and frustrated.  At the end of  last year, I tried to get them to hear me. Questioning why in the world we would send him to the 4th grade when he was barely at 3rd grade level in one area...and only on a 2nd or 1st grade level in other areas.  I was basically accused of babying him.  I needed to let him do more on his own.  If maybe we just tried medication for his ADD he could focus better and learn faster.  I walked out of that meeting so angry, and sat in my car crying feeling like the biggest failure of a mom.  Am I crazy?  How do they not see what I see?  How can they not see that there is so much more going on with him?  This year he was due to have all of his testing done again.  I was hopeful that we would see different results.  I walked into the meeting with different people than the previous year, with the exception of 2 individuals, feeling hopeful, partially due to the fact that I had talked to his teacher a month earlier.  When I walked into his room on that day, he looked at me and he said, "I get it...I get what you were explaining to me at the beginning of the school year."  I always go in before the year starts and try to "prep" the new teachers on what they should expect.  He told me he was a little skeptical and wanted to see things for himself, and then basically said, you're right, he really doesn't understand why he is here or what he supposed to be doing.  He just kind of goes through the motions and does what everyone else is doing.  And I looked at him and said "Thank you....you are the first teacher to understand what I'm talking about."  So....back to the meeting.  The school psychologist started with the results of the testing.  His IQ test shows he is well below average.  However....he starts explaining, he believes this is due to the fact he had a hard time paying attention...so his ADD probably affected the score.  At that point, I can't even imagine what the look on my face was, I'm pretty sure I was looking at him like he was completely nuts, and I let him finish what he was saying, and then I said, "I'm sorry, but I don't agree with you, and I'm not leaving this room another time with a diagnosis of ADD." So we went around the room everyone giving their thoughts for close to 2 hours.  I finally said this... "I get why you want to label him with ADD, he does to some extent have a problem with paying attention.  But, let's look at this from a different angle.  If you were in a room listening to a lecture, and had absolutely no clue what the person lecturing was saying or understanding what he was talking about, would you pay attention? Or...would you start drawing in your notebook or staring out of the window or doing whatever else until you heard something that you understood and brought your attention back?"  Ahhhhh that makes sense.  If he can't understand what the teacher is telling him....and there are many times I need to find different ways to explain things to him....then how do you expect him to pay attention? So the school psychologist looked at me and said, "So you think these scores are accurate?"  And I looked at him and said, "Absolutely."  From there we formed a new education plan for him.  He will be in a more integrated classroom where more focus can be put on what he needs help with.  I left that meeting wanting to throw my hands up in the air and scream "YEEEESSS!!!" Finally....finally they listened, and I was able to leave a meeting feeling semi intelligent and happy.  Such a relief, that he will soon get the help he needs instead of getting pushed from one grade to the next, and getting lost in the system. 

It's been an interesting few months.  A lot of learning...always learning, understanding, growing, moving forward, even though in some ways it feels like I took a few leaps back. It's ok because now I know more of what I need to work on, and I'm doing just that.  There's always going to be frustrations.  If you've ever had to take care of someone with this disease, then you know it comes with the territory.  The important thing for me to know, is that I'm sure that one day I will be at a place where I feel like I'm completely ok, and that is what keeps me going.  I'm moving forward and I'm trying to work on things and really that's the most important thing. 

Sunday, August 10, 2014

Roller coasters , Reality, and Revelations...

One thing that you may or may not know about me...depending on how well you know me or how many of my posts you've read...is that when life starts throwing too many things at me, good or bad, I get really overwhelmed.  Like...shut myself in my room, curl up in a ball, ignore everyone...overwhelmed.  Usually only for maybe a matter of hours...but still.  My life is already a roller coaster ride....I've started to hate roller coasters.  The last week and a half a few loops were added to it. Something good would happen...something would go wrong.  This was seriously my what the Hell pattern for about a week and a half.  Some really big things....some normal everyday things...some little things...but all combined together in this short amount of time? Not so good for me.  I've been thrown into the position of "take care of everything person." To be honest, I like having control, but I HATE this. The man I married is still here.. Yes he is very sick, physically and mentally he is older than his actual age, his memory is bad, he can't drive or work anymore. He has days he's completely out of it  and sleeps for hours and hours. I can't trust leaving our 10 yr old home alone with him for long periods of time.  But...he is still here and he can still function.  There are still things he can do...and I really get no help from him whatsoever.  I haven't worn my wedding ring in a couple of months. It doesn't feel like anything is missing. I don't even feel like I'm married, and it's not fair.

So about a week and a half ago....and I'll try to sum it all up the best I can, because honestly I could probably write a book about everything that happened in this short amount of time... Our oldest son was contacted on FB by his older half sister whom he's never met.  The last time he saw his "mother", was when he was 2.  He has two older half siblings and two younger (that I know of) that he has never met. He has known about them, but none have tried to contact him until now.  He's 19, so it's his choice, and I think it's completely freaked him out. He's not sure how to feel about all of this, and I'm sitting on the sidelines not knowing how to feel about all this either.  I spent years being overprotective of him....maybe too overprotective and now I have to stand back and let him make this decision on his own.  I have to be honest this sucks....like really sucks.  I hate it.  I didn't want this day to happen.

A couple of days later, I was finally offered a career position at work.  This is a good thing...a very good thing.  Like the best thing that has happened for me in a really long time.  I now have really good benefits and peace of mind, and it is a huge relief...huge.  The only downside, I don't have control of the hours I'm scheduled...don't care, that, I can deal with.

Just a few short hours and maybe 3 hours of sleep after I got this fantastic news, Todd and I got in THE worst argument we've ever had...ever.  Starting an argument with me when I'm tired is a very bad thing.  You're not going to win, and you may get locked out of the house and told to leave in a not very nice way.  All I can say is this, it involved the car and driving, and  I was called a name no woman should ever be called.  In the end...I got the key to to car back that he has been hiding from me, he was allowed back in the house, and I will never...ever put that wedding ring back on my finger again.  He told me I took his manhood away.... No...I was not the alcoholic.  This is where we learn to take responsibility for our actions.  Two hours later, I lost myself in some really loud music at a music festival with two of my kids, and it ended up being a good day.

In the next few days we ended up at the emergency room, because even though I don't want to be married to this man anymore, I am still his caregiver.  Pneumonia again...because he can't quit smoking...add this to our routine.  I also celebrated my birthday, part of the day with my kids part of the day alone.... Good day.

So these were all the big things.  There was one other thing that I'm not talking about...it only concerns me...but combined with everyday life and a lot of little things...I shut down. Two nights ago I walked into my room, shut the door, curled up in a ball on my bed and cried....sobbed actually for at least three hours.  I don't remember the last time I cried that hard, it's been years, and I needed it.  One Xanax and 15 hours of sleep later, I woke up looking like Hell, but I got up and put my big girl pants on, because all of this is reality.  Whether Todd is here or not, I'm still going to be the one dealing with everything.  This is life right now...and I say this all the time...I either deal with it or I don't.  So....I deal and life goes on.

This morning I had a dream, and I rarely remember my dreams, but I definitely believe they have deeper meanings to them.  Basically my dream was this... It was me and three of my kids...Todd and our oldest son were not there.  We were on a flat raft in the middle of these massive rapids.  Waves and waterfalls all around us. We had to stay on this raft , every time we fell off we had to start over from the beginning.  Try after try...fall after fall...starting over, again and again, until finally we made it to a wall...or a cliff.  I don't really know what it was, I just know I had to climb it.  I got to the top and laid down and closed my eyes...I remember just feeling absolute relief.   When I opened them, I looked out at a beautful white beach with calm blue water.  No waves, just still...calm...peaceful...water.  Right before I woke up I heard my kids laughing and playing and saying, "Mom, we need to stay here for awhile." And me saying, "Yea, that's a really good idea."  I woke up feeling pretty good about things.  Interpret it how you want.. But I can sum it up in one word... Survivor...